PRESS

The Morgan Foundation Forms PSC Registry

The Morgan Foundation is taking the lead in forming a PSC registry among liver centers so that a database of information on adult and pediatric PSC patients can be assembled. The nearly 20 participating centers include Le Bonheur Children’s Medical Center, The Mayo Clinic, Harvard University, the University of Cincinnati, Northwestern University and the Hospital for Sick Children in Toronto, Canada.

 The first meeting of registry participants took place in Memphis, Tennessee.  With initial funding from The Morgan Foundation, the registry could be functioning in early 2006.  In the future, the Foundation hopes to obtain NIH backing for the registry and put together a multi-center consortium for research in PSC. 

Pictured from the North American PSC Registry meeting are left to right
Dr. Steven Freedman, Harvard;
Dr. Gene Whitington, Le Bonheur;
Dr. Velimir Luketic, Virginia Commonwealth University;
Dr. Joseph Odin, Mt. Sinai School of Medicine;
Dr. Benjamin Shneider, Mt. Sinai School of Medicine;
Dr. Kim Fisher, Le Bonheur;
Dr. Dennis Black, Le Bonheur;
Dr. Konstantinos Lazaridis, Mayo Clinic;
Dr. Ravinder Anand, EMMES Corporation;
Dr. Peter Durie, Hospital for Sick Children, Toronto;
and Dr. Ronald Sokol, Denver Children's Hospital.
Also attending was Musette Morgan (not pictured).

Other physicians were involved in organizing the registry, but did not attend the meeting:

Dr. William Balistreri, Cincinnati Children's Hospital

Dr. Estella Alonso, Children's Memorial Hospital, Chicago

Dr. Deborah Freeze, Mayo Clinic

Dr. Philip Rosenthal, University of California, San Francisco

Dr. Marshall Kaplan, Tufts

Dr. Jayant Talwalkar, Mayo Clinic

Dr. Karan Emerick, University of Chicago

Dr. Keith D. Lindor, Mayo Clinic